If it is plausible that genetics are not the cause for all autism, and that it is a combination of environmental impact on the genes, this might explain the rate of increase in autism. There are a lot of charts with varying dates that discuss the increase, but there are not many that focus on the broad timeline of the 1970s to the present, in which we really see the rise. When discussing the increase, many people say that diagnosis has become easier and broader. In some cases this may account for less than half of the increase but in many instances the requirements to be included in data that show the increase have become more narrow, and stricter. Which actually reflects a larger increase than we even know.
So if rates of autism are genuinely increasing, what does that mean for our future? Today’s children with severe autism will eventually become adults with serious support needs. As parents of adults with autism now, Jill and I both agree the current supports in place are not enough. It is not a level playing field state to state either and this is a real concern as the rates of adults with autism continue to grow.
While not a definable term, “Severe Autism” describes a portion of ASD that requires 24-7 care for the individual. Many individuals with severe autism are non-verbal or have limited language and pose great safety risks to themselves, they are unable to work in traditional settings or independently, and need a great deal of constant support. As an autism community, we must come together to get our children, who will become adults, more. They deserve more.
Jill and I discuss a lot of nuances in the autism research field and some of the important work to be done. Her advice for parents and professionals to manage stress pairs well with my philosophy of care. Encounters with your children should be positive and revolve around fun and the genuine joy of your child.
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