Autism Living Facilities and Out of Home Placement | Interview with Lisa C

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I’m happy to introduce you to an old friend of mine, Lisa C. We met years ago when my son Lucas went to the same school as Lisa’s oldest son Ethan. Two of Lisa’s three children are on the autism spectrum, but Ethan’s diagnosis is more severe. Lisa’s fall into the autism world happened when Ethan was around 13 months old, and through her job as an elementary school counselor, she was able to recognize some autism behaviors that Ethan had. Now as an adult, Ethan is living out of the home in a specialized autism placement and Lisa discusses her experiences with autism living facilities and the process she went through for Ethan.

Even as a young child, Ethan exhibited a certain degree of aggression, including biting, hitting, and self-injurious behavior. But as Ethan grew older and bigger, the aggressive behavior went from an occasional event to nearly hourly. Finally, the therapists suggested that a safer environment might help them try different plans or medication to improve Ethan’s quality of life.

Lisa’s calm and thoughtful approach to this issue is one of the reasons I wanted to talk with her today. This decision can be difficult not only because of the legal hoops to jump through but also because of the emotions involved. Lisa wants parents to prepare for how long it takes to find an out of home placement. She’s been waiting since May of 2019 for an admission date for her son, and finally received one in July of 2020.

One of the things that Lisa wants parents to realize is that the kids that have the most behavioral and medical needs will have to wait the longest for space in autism living facilities to open up for them. You can’t give up hope that a bed will open up for them. She encourages you to reach out to other parents in the same circumstances via groups on Facebook and connect with them. This will help you focus on every parent’s goal of making sure their child is safe, happy, and as independent as possible.

Today’s Guest

Lisa is a former elementary school counselor with a M.Ed in Education. She is now a full-time parent of 3 children, two of whom have autism. She has worked as a freelance writer for Central Penn Parent magazine and maintains a blog about the challenges of raising children with autism. Her blog can be found here at crogs5.blogspot.com.

You’ll Learn

  • The chances of siblings being diagnosed with autism.
  • Some of the reasons to consider an autism living facility.
  • How an inpatient facility is different from an out of home placement.
  • About Facebook groups that can help you connect with other autism parents.

Resources